Born 18th Jan 2012 - an event leads to a brain injury
2 weeks old - diagnosed with bilateral retinoblastoma
6 weeks old- begin 6 months of systemic chemotherapy (JOE chemo) and laser treatment to both eyes.
Aug 2012 - Systemic chemo ends. Hickman line removed and Gastro jejunal (GJ) feeding tube fitted
End of Aug - GJ tube comes out and gets reinserted.
Sept 2012 - laser treatment.
Oct 2012 - laser treatment.
Nov 2012 - laser treatment.
Jan 2012 - IAM- Inter Arterial Melphalan treatment (melphalan chemotherapy injected into artery to directly treat left eye tumours)
Feb 2013 - IAM Inter Arterial Melphalan, dose 2.
March 2013- laser treatment.
April 2013 - laser treatment.
May 2013 - GJ tube comes out and goes back in AGAIN
June 2013 - IAM Inter arterial melphalan, dose 3.
July 2013 - laser treatment and IAM - Inter arterial melphalan, dose 4
My journey so far ....